rare diseases Archives - Fit Found Me

ALS Research Reaches Turning Point With Gene Targeted Treatment

Michelle — Mon, 26 Dec 2022 16:36:17 +0000

For decades, a diagnosis of amyotrophic lateral sclerosis has carried with it an almost unbearable certainty. Patients and families are told to prepare for relentless decline, loss of independence, and a future measured not in years, but often in months. Treatments approved over the years have offered only modest extensions of life, with effects so …

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Louisiana Man’s Functional Cure Offers New Hope for Sickle Cell Disease

FitFound Me — Sat, 02 Jul 2022 11:24:42 +0000

For generations, sickle cell disease has been one of the most difficult inherited blood disorders to manage. It affects millions of people around the world and has long been associated with recurring pain crises, frequent hospital visits, progressive organ damage, and a shorter life expectancy. Although advances in medicine have helped improve symptom management, many …

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Louisiana Patient Reaches Life Changing Milestone Through Gene Therapy

Michelle — Sun, 26 Jun 2022 15:23:13 +0000

For most people, becoming a commercial pilot is a matter of training, passing medical exams, and logging enough hours in the cockpit. For Daniel Cressy, the dream seemed impossible before it had even begun. Diagnosed with sickle cell disease as an infant, the 23-year-old from Metairie, Louisiana, spent his entire life managing a condition that …

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Woman With Three Deadly Autoimmune Diseases Walks Again After Experimental Cell Therapy

Michelle — Tue, 17 May 2022 08:46:28 +0000

A woman who was once so sick she could barely leave her bed is now back to living a normal life after doctors used a powerful experimental therapy to shut down three separate autoimmune diseases at the same time. Researchers in Germany say the 47-year-old patient had reached a terrifying stage before receiving the treatment. …

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